Comments for Severe Muscle Weakness/chronic muscle and bone pain.

Very sad state of medicine in this country...
by: Kerri Knox, RN- The Immune Queen!

Hi David,

I'm so sorry to hear about your issues, and I think that it is a TRAGEDY that you are given some random diagnosis of Muscular Dystrophy -when you test negative- without doctors testing for EVERYTHING that could possibly be causing your issues before giving you an 'incurable' diagnosis.

This is the state that our 'First World' medical system is in and this is why I do what I do.

While I have never heard of anyone being misdiagnosed with Muscular Dystrophy instead of Vitamin D Deficiency, it is certainly not outside the realm of possibility. However, as much as I would like to say that this is your entire problem, it's not likely to be your entire problem.

First of all, vitamin D deficiency can ABSOLUTELY be CONTRIBUTING to the muscle weakness and pain that you are experiencing- and it can be contributing to SOME of your neurologic issues. So, get your levels up to the 'OPTIMAL' Vitamin D Levels and find out how much of it is due to Vitamin D Deficiency.

But you are NOT going to get there with the dose that your doctor is giving you. First of all, your Vitamin D Level is EXTREMELY low to almost non-existent- and a TOTAL dose of 200,000 IU's is NOT going to fix that- ridiculous!!

You are probably going to need closer to 600,000 to maybe a million IU's to correct your Vitamin D Deficiency. So, you should read the Vitamin D Deficiency Treatment Page and you'll see that your doctor is NOT even coming CLOSE to following the 'Standard of Care' and simply has NO IDEA what he is doing.

Next, you should read my page on why you should NOT be taking Prescription Vitamin D, another breach of 'Standard of Care' by your doctor who SHOULD be using Vitamin D3 Supplements.

Ugghhhh!!

So, if you want to contact me using my contact form and leave your telephone number, I can give you some better and more effective dosing options that will bring your levels up to normal more quickly.

Keep reading for more about what you should ask your docs about (below)....

Vitamin B12 and Mitochondrial disorders...
by: Kerri Knox, RN- The Immune Queen!

OK David,

Next, your doctor SHOULD have tested your Methylmalonic Acid level, which is a very sensitive indicator of Vitamin B12 Deficiency- NOT a 'Vitamin B12 Level'.

Vitamin B12 Deficiency can cause an EXTENSIVE list of Neurologic and Mental Changes that definitely have mimicked Alzheimers AND multiple sclerosis and other 'degenerative' neurologic changes.

And there have been some great studies on slowing down the rate of degenerative nerve problems (specifically ALS and MS) with MASSIVE doses of a form of Vitamin B12 called Methylcobalamin B12- and yes, it MUST be methylcobalamin and not any other form of Vitamin B12 (again, contact me for specific dosages if this is something that you would want to try out)

Another thing that your doctors are remiss in, if they have not done- which I doubt that they have- is to test you for Mitochondrial Disorders and Vitamin E Levels. Both of these problems can and do cause degenerative neurologic problems.

They can do blood levels of:

Coenzyme Q10
Selenium
Vitamin E
Carnitine

A deficiency of any of these can absolutely contribute to your issues and would be an indication of either mitochondrial disorder or a genetic defect in processing either carnitine or Vitamin E- which while rare, is certainly not unheard of and should ABSOLUTELY be ruled out in a young man with degenerative neurologic processes going on.

If you haven't seen anyone who specializes in Mitochondrial Disorders, you should insist upon it.

You can actually test for all of these- as well as detoxification problems- in a urine test that I provide called an Organix Profile. It tests for all of that and more- any of which could be your problem.

But keep reading to find out what ELSE they should have ruled out, but didn't...

Celiac Disease...
by: Kerri Knox, RN- The Immune Queen!

Hi David,

Part III of what your doctor needs to rule out. This one is Celiac Disease, I have it called Gluten Sensitivity on my site- which isn't EXACTLY the same thing- but you'll get the idea anyway.

If you have not been checked for Celiac Disease- insist upon being checked- even if you have no digestive or skin complaints, it IS possible that you have celiac disease. For one thing, being so young and having so many problems and having such a low Vitamin D Level makes me suspect that you have an absorption issue- and I ALWAYS suspect Celiac Disease in:

1) Young people with severe health problems

2) People who apparantly aren't absorbing nutrients- any nutrient, even one single nutrient.

Celiac Disease also has a well-known presentation called Gluten Ataxia. Here are some studies on gluten ataxia to see if any of these seem like they might apply to you:

Range of Neurologic Disorders in Patients With Celiac Disease

Idiopathic cerebellar ataxia associated with celiac disease: lack of distinctive neurological features <---It's important to note that in this study that NONE of the patients in the study had digestive complaints-- that's ZERO of them, yet they had celiac disease.

There are many more studies on this David, and even if you test negative, please consider going on a gluten free diet (only AFTER testing though, as you need to be eating gluten to test positive for celiac disease)- even IF you test negative.

There is also genetic testing for Celiac Disease as well, but the limitation is that you can still be gluten 'sensitive' and not have Celiac Disease. But if you DO have the genes, then it is much more suspicious.

OK, that's a lot of information. Let me know your thoughts and what docs have and haven't done.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Easy Immune Health.com

Very Helpful!
by: David

Kerri, thank you for taking the time to answer my question! It definetly tells me that their are other possibilitys! I have had quite a few tests done to confirm my MD diagnosis but with no results. I had a muscle biopsy done and the results were inconclusive, I mentioned the genetic testing was negative as well.

I am going to follow your recomendation to get the vitamin D issue resolved and will go from there with the others. I have a strong feeling about the celaic disease recomendation, it seems to fit 99% of my symptoms. I do have frequent diarrhea and digestive issues... I also have the tingling in my hands and feet... I literally feel like I am 86 not 26. Haha.

Thank you so very much! I will let you know what happens! Happy holidays!

PLANTAR PAIN IN FOOT AND HEEL
by: trevor

Dear Kerri,
PLEASE HELP. I,M INCREASING VIT D TO A
1000 IU AND INCRESING MAGNESIUM BUT THIS PLANTAR
FASIITUS PAIN IS SO SO PAINFUL.

MY DOCTOR GAVE ME A STEROID INJECTION 2 WEEKS AGO
IT HASNT HELPED

I FEEL LOW AS THE PAIN HAS INTERRUPTED MY SLEEP PATTERN.OVER HERE IN THE UK ITS VERY COLD AND ICY
AND PAVEMENTS ARENT GRITTED AND I,M FRIGHTENED OF
SLIPPING OVER.

PLEASE GIVE US HOPE,THANKS KERRI
A SPECIALIST FOUND I WAS DIABETIC 15 YEARS ON

For Trevor- Plantar Fasciitis or Peripheral Neuropathy..
by: Kerri Knox, RN- The Immune Queen!

Hi Trevor,

OK. First of all Trevor, I'm not sure why you are only taking 1000 IU's of Vitamin D. Why so low? Hmmm. I must have forgotten to point you to my Vitamin D Requirements page.

1000 IU's is a newborn infant's dose of Vitamin D and not the dose that would maintain Vitamin D Levels for an adult who is EXTREMELY likely to be vitamin D deficient.

In fact, in one study done in Finland, they found that kids who took 2000 IU's every day had extremely reduced rates of diabetes- and those were children!!

Second, I consulted with my partner the Tendonitis
Expert, and he and I both agreed that worrying about slipping is not usually a worry of people from a result of Plantar Fasciitis.Instead, considering that you have had diabetes for 15 years, it's possible that you have peripheral neuropathy. Have you discussed your foot issues with your doctor?

If you do have peripheral neuropathy, then you might be interested in the nutritional Causes of Peripheral Neuropathy to see what you might be able to do about it that your doctor won't tell you about.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Easy Immune Health.com

vitamin d please how much
by: trevor (u k )

Doctors wont discuss vitamin d or any natural
medicine,they say they are not allowed to.
SO KERRI WE LOOK TO YOU FOR REAL HELP
A lot of us out here need your help.

So on our bottles of vit d3 it says max dosage
per day 400 iu now i,m taking 1000 iu with
pauline and adrian.PLEASE TELL US WHAT WE CAN TAKE BECAUSE WE ARE CONFUSED.

My doctor says yes it could be Diabetic Neuropathy ,i.ll give you some pain killers.

I DONT WANT TO TAKE PAINKILLERS ALL THE TIME,THE BODY TELLS ME IT ONLY SUPPRESSES THE PROBLEM,I WANT TO TREAT THE ROOT CAUSE AND GET WELL AGAIN

PLEASE HELP KERRI

I can only give you information...
by: Kerri Knox, RN- The Immune Queen!

Hi Trevor,

That is really too bad that your doctor is unwilling to work with you- even though Vitamin D is NOT an 'alternative' or 'natural therapy'. It is a medical necessity and I'm betting that the laws/regulations/guidelines change for doctors in years to come and that Vitamin D Levels will become normal and your doctor will be considered negligent to leave a depressed diabetic with peripheral neuropathy vitamin d deficient.

In the meantime, I cannot give you specific recommendations either. All that I can do is to show you what researchers have to say about the use of nutrients.

So, if you want to get the most out of my site, Trevor, there is a lot of information there that may help you, but you do have to read it.

So, please click on the links below to read the following pages on the topics that you are requesting information about:

Vitamin D Requirements

Causes of Peripheral Neuropathy

Treatment for Peripheral Neuropathy

So, read the information carefully and you must decide if any of it could benefit you and/or be safe for you to do. It is best that you discuss this with your doctor, but as you said that you cannot- I am happy to be your advocate and show you what the research says about these subjects.

Kerri Knox RN Immune Health Queen

Kerri Knox, RN- The Immune System Queen
Functional Medicine Practitioner
Easy Immune Health.com

muscle pain and low vitamin D
by: Anonymous

I have been suffering with severe thigh, knee, and calf pain for years. Excruciating at times and really affecting my quality of life. Oftentimes, I'll avoid taking part in social events that require much walking. For years, I've taken myself off statins assuming that it was them that caused all the muscle pain. Recently, I was tested for vitamin D and found to be extremely deficient. As well, the blood work was prompted by an ultra sound that showed osteopenia. This all makes sense, after years of suffering. Unbelieveable!!! I had looked up symptoms of fibromyalgia, m.s, all sorts of things, simply looking for answers. I am hoping that the new script i have for 50000 vitamin D once a week for the next 3 months, starts to help.

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