by Andrew
Gluten Sensitivity Testing May Not be Accurate
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by Cathleen
(Kenwood, Calif. )
Cathleen's Self Diagnosis of Gluten Sensitivity
When will people start trusting their own selves and not have to have everything confirmed by a medical doctor? I self-diagnosed my Celiac Disease, but people still wrinkle their noses at me because it wasn't proved by an MD.
I like your web page. It has so much good information and is easy to read. Thank you!
Cathleen
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by Heather
I am pretty certain that I am gluten intolerant. Whether it isjust an intolerance or sensitivity or full blown celiac, is what I am trying to determine. I have been feeling horrible for a while, after doing some research I have concluded that my symptom pointed to gluten intolerance.
So I cut out gluten and almost instantly started to feel better. However now I want to try and get it diagnosed, so I have.it in my medical record and stuff. And from what I understand, in order to get diagnosed you need to be eating gluten. So I started eating it again.
I feel horrible now, but whats worse is I feel like I want to eat everything in my path. Especially foods containing gluten. Why is this?
Also, for testing purposes, how much gluten do I need to eat.
Heather
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by Leslie
(Rochester, NY)
First some wordy background: I think I have a gluten intolerance, but I am not sure. I've always had a "sensitive stomach" (like my mother) which got worse about a year ago when I was diagnosed with IBS-D after weeks of loose stool and diarrhea.
Since then I've also lost a lot of weight to the point of being unhealthy (I'm 5'7" and was at 112 at the low). My doctors just thought I wasn't getting enough calories, but the more I tried to eat "bulky foods" like pastas and breads the worse I felt, and I wasn't able to gain more than 2-3 pounds even after several weeks of what I considered over-eating.
My low BMI has also caused me to skip ovulation, and have late periods with spotting in between. I (was) almost always tired, bloated, and nauseous.
I decided to do the 60 day test, and have mostly stuck with a GF diet. I feel a lot better already (I just started the test last week) and my sinuses and allergies have lessened. I am no longer nauseous every day, and my stools have returned to closer to normal. I am hoping that the weight I lost starts coming back really soon.
Based on this I feel I am at least somewhat intolerant.
My question is this: does gluten sensitivity get worse over time? So if I go GF now will I never be able to eat gluten again or will I heal and be able to have it again in the future?
Also - how easy is it to cross contaminate things? If I got to a place like Olive Garden where practically everything is made with gluten filled pasta, is anything labeled GF really going to be GF? (In otherwords, can I still go out to eat and not get sick?)
I LOVE this site - it's really informative and helpful. Thanks so much, and sorry for being so long winded here.
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Recently I had a flair up with ulcerative colitis. My chiropractor asked me about being gluten intolerant. Many years ago I had a food allergy test done and I was positive for wheat, rye, and oat flour. I had abstained from them for many years and returned to eating them as I felt better. Several weeks ago I stopped eating them to get the colitis under control. Now I know more about the damage that can be done if you are truly intolerant.
If I am to have a stool test done for gluten I need to be eating gluten foods. How many days do I need to eat them prior to the test being done? Thank you very much for the information on your website. It is very helpful.
C. Bragman
Cary, NC